Well it’s time to play catch up as I normally do. I wish I could write weekly but nothing really big happens in my life to write a blog. Anyways, here’s a quick update….
First, one of my two banana plants died 😦 Very sad about that but the other is thriving as well in the house. I have a plant light on him and it stays on pretty much the whole day and sometimes nights. I did subscribe to a plant of a month thing and so far I have a Boston fern and a Golden Croton. My jade plant died on me as well but my Kalenkoe (I think that’s the spelling) is thriving well. I am surprised most of the sun plants are doing as well during this sunless and drab winter. Of course my Norfolk Island Pine is doing fantastic! He is looking forward to getting the lights off of him. He thinks it makes him too girly! He’s cute! I cannot believe he’s two years old! Plant feeding will start next month for all! I think that’s all the plant news I have. Oh and my Magnolia tree…. yeah she’s rockin’ it! It’s cold outside and she still has some green leaves! I see a few buds on her as well. I know I will probably get some plant food for her but the experts say give a new plant a year to establish so she will be fed late summer so probably next Spring (2020) I will have flowers! Yay! Ok…. I think that is it!
I am still in the process of teaching myself Italian. I have been doing free online teachings. I am going to dive into reading and next month I want to join a group of all levels to start comprehension. I tried those online sites where you can reach out to others but most use it as a dating site. Even in my description I wrote not interested in dating, just talking and learning Italian. It’s a slow process but I’m ok with that. I know more than I think. I use Memrise and when the speed memory comes up, I can nail them out. I just lack the self confidence. It’s kind of like when I was learning ASL and going to the functions. If you make an effort, they (the foreign language person) will be thrilled! Just difficult to find Italians to practice. Plus I don’t drive so that kills it there. I know there is Skype and other resources but I’m skeptical on people (especially after all those ‘learning language’ sites). I’m not where I would like to be but I’ll get there.
The dogs and birds are still with us. Jacob is 9 and Zeke is 6. I can see the gray in their faces but they still have their active moments. I’m feeding Jake pumpkin for his digestive issues. He wasn’t having good BMs so the vet suggested regular pumpkin. I didn’t think he would go for it but he does like it. I do that every other day. The birds, Sammy (I think about 7 years old) and Cino (about 1) are still around. I did have a female but she got out. The boys are not as active since she has been gone. I think after the holidays are done, I may get another female. It’s nice to see them fly around the room and interacting. But man are they loud!
I have been off of prednisone for almost a year (March 2018, last used) and have been getting infusions of Benlysta. Somehow I got a hole in my left eardrum. It did get infected, saw the ENT, cleared that up. I really don’t want to do any patch up work especially since the infection is gone and I haven’t had any problem with it. I do see the specialist in February and she will make a recommendation about surgery. I told my rheummy about it and she told me if it isn’t bothering you, it really isn’t worth it. But she told me to see what the specialist has to say. But no skin rash anywhere for a year and hoping it continues!
Here’s to hoping 2019 is better for my friends. Janice and Kelli both lost their fathers this year. It’s a blow to any girl at any age. Dads are supposed to be immortal.
I think I caught up! Next time will be in 2019! WOW! Have a Merry Christmas and a Happy New Year!
I wasn’t expecting this but I have twins!
I tonight I only bought one but apparently I have two! I watered them and will have to get soul and fertilizer this weekend. They are in my front widow for the moment.
As for names, I am not sure yet. I just want them to get acclimated for now. So super excited!
Ok, it’s been a while since I have written but nothing much has been going on. Doing the infusions and they are going ok. Waiting to see what writer will be. Skin is healthy-ish looking so that’s good. Other than typical medical stuff…I’m ok. Mentally not really but trying.
Enough about me, I want to talk about my plants. I currently own and have kept alive, 3 cacti and one Norfolk Pine. First my cacti..
I have a Jade (in back), Gollum (little one in front) and a Kalanchoe.
The Jade and Gollum I got on Amazon about 2 years ago as little 1 inch pot. The Kal was a gift to me as a Mother’s Day gift (2018) from my in laws. I basically kept them outside during the summer and soon they will be coming in for the winter. I do have a small plant light for them.
Next I have my Norfolk Pine that I got about 3 years ago.
I bought this little guy at Home Depot probably around this time of year. I wish I took pictures of him when he was smaller but he is a slow growing tree. I don’t fertilize him but I do go through and clean up the dead branches. I used MiracleGro potting soil and water him once a week, turn every 2 weeks and must when I remember (he likes humidity). I did name him Mr. Tree. Yup I’m creative!
My new baby will be delivered, hopefully, this weekend! She is a Gran Nain banana tree! Very excited and looking forward to charting her progress! She will be delivered in a quart container. I’m still not sure what soil to get so I may be asking nurseries about how to care for her. Still waiting to name her.
Oh also I have a Sweet Magnolia tree outside! I got her in August and it looks like she took! I have new growth but since discoloration but it could be from the weather.
She’s the little tree in the corner. Her name is Maggie.
I’m not there yet but during in my bed drinking my tea awaiting my first benlysta infusion. Trying to hydrate so my veins will be easier for them to find. I will update this blog as my day goes on but i just wanted to start this. I have podcasts,movies,music and my Italian work ready to go!
IV is in
Well I am all finished with #1 and I do not have any weird reactions. I am just tired but that is an everyday thing for me. Now I have to get my pups tired and bird some play time so I can chill out on the couch and watch some Netflix. Next appointment is April9 at 1030am. Fun times!!
So I went to see Dr. McHargue (my dermi) today at the New Center One building in Detroit. I really do love this guy. He reminds me of my first dermi who didn’t sugar coat or treat me like I was crazy.
First on my red hands…
If I massage them, the redness goes away. This is one of the many fun things with Lupus and connective issue disorder. This redness goes up my right arm to my shoulder. It doesn’t hurt but it does give me a complex. I don’t know what I am going to do come summer. The dermi pretty much told me it was a mix of my disease plus how cold it has been. He recommended taking Vaseline and covering my hands up at night. He also stated that the muckier the gloves are (after a while), the better absorption the skin will take. Odd huh? I still need to get my calcium and D3 supplements but in due time.
Now the new treatment… I am waiting for my rheummy to call me back but I am going on Benlysta. This will get me off prednisone and help with my skin issues as well. I have red patches on my face as of now and a bit of the butterfly rash.
So here I am now, just waiting. Probably won’t hear anything until Monday (today being Thursday at 4:42pm). I will update when I know and can put it into thoughts/words. That’s been hard lately. Have a good night!!
UPDATE: I received an email from my rheummy stating I need 3 tests done. I need an x-ray of my chest, a hepatitis panel (blood work), and a TB test. Not sure if this is a walk in or I need to make an appointment but it has to get for before starting this treatment.
I think I have finally eased my flare from our trip. I anticipated some form of flare but I do not regret it. I enjoyed being with John as he made all the plans. I have a lot of cool memories from it all, even the driving. I have my memory box decorated and my last piece are the photographs I sent out.
But now,things are quiet and back to normal. At least next week I get to do bfast with my girls, another bfast date with family, and the last bfast date with my dermi. I’ll just bring some mini muffins or something.
I’m hoping for some kind of forward thinking with the dermi. He may start me in benlysta since nothing else is working at the moment. I still have red rashes on my hands, fingers, arms and face. Tired of being on prednisone. Tired of the whole song and dance to give me a quality of life. What quality? I’m a slave to my digestive system and bladder. They run the show.
Anywho just a bunch of ramblings…
I am going through a dark patch in my life right now. I am on disability and feel isolated from everyone. I know it is not their fault since they get to go to work and interact with other human beings. I’m not so lucky. I have a few things that keep my sanity levels from plummeting and I wanted to write them down so I can remind myself on what to do. Kind of like a life preserver, if you will.
My favorite music is from the 70s but I do like any kind. It helps to move around and otherwise, lift my spirits for that time.
They need to be taken care of, as well as myself. They get me up to go outside and play. Sometimes I wish I was a dog so I have absolutely no worries, especially if I had a very caring owner.
I have a mess of these and in all types. They help with keeping me focused on what I am doing right now. No worries about my ‘dark cloud’. Just me, a book and colors of pens/pencils.
My blog is like my friend that I can say anything to and not judge or get upset. If I want to write about my good or bad days, I do it. Some people who follow don’t like the ugly truth but it’s there. We all get them…I can just say them
These are just a few mind distractions that I use. I’m pretty sure I am missing a few but these are my go-tos. If you have any, please let me know in the comments. I would love to know how you handle your ‘Dark Cloud’.