Archive | April 2017

New Center Derm/Rheum clinic

After having such a bad experience with the dermatologist at the HF Troy campus, my rheummy recommended to go to the New Center clinic.  She told me they are familiar  with lupus.  They are only open once a month on Fridays.  So I thought, what the hell why not try this.  So I did…

First, let me say they (the staff) were very friendly and didn’t push me along. They first person I saw was the resident and she was very attentive. She listened to my medical history and asked lots of questions too.  After she and I talked, she came back with the doctor and doctors-in-training and my rheummy’s backup doctor.  It was very crowded in this little room.  Anywho, the doctor looked at my scalp and my hands.  Of course, my sores were gone.  Luckily, I did take a picture but it wasn’t good but he got the idea.  So the sores on my lips are going to be treated as cold sores since I am on immune suppressants.  I haven’t picked up my Rx yet but he told me that the side effects are very minimum (headache and sleepy).  But it was so nice to have someone medically listening instead of pushing me along.  I have to follow up in 2 months to see how I am doing on this cold sore antibiotic.

So today is a good day, medically and physically.  I love these good days since I can do things that I normally don’t.  I think my fitbit helps me move too with these solo challenges.

Thanks for reading and stopping by.  I do appreciate all the good thoughts to help me and other Lupus warriors get along.  Now….I am going to find me some chocolate and enjoy this afternoon before the rain comes!

**DJSpoonieGirl**

Advertisements

New Year catch up

I know it’s been a while since I have done this. I have been dealing with very sore hands and fingers that didn’t allow me to do much.  It’s not a great picture2016-12-14 14.18.13 but those little sores that were on my fingers made life hell.  I went to a dermatologist (dermi) and she went off the deep end telling me it was blood clots thrown by my heart, I needed a TEE scope and $100 of ointment that didn’t do jack.  Clearly, I was upset and went to this heart specialist who took about 14 viles of blood. After all that, no one called to tell me what it all means.  Thankfully Henry Ford has MyChart and I can kind of follow and ask questions.  So end result to this……..Heart is great. Well that’s good news but why do I have this on my hands?!

I ended up calling my Rheummy.  I told her about the debacle with the dermi and whatnot. Plus I told her no one gave me any insight on the blood work.  She looked at it and said I was ‘normal’ with the blood work for a lupus patient. Then she put me on steroids to help with the inflammation.  You know what happened?  The steroids worked!  A $3 bottle of little pills worked!  I knew I should have went to the rheummy first!  But now, I have almost full use of my hands and things don’t hurt as much, even when they are cold!  YAY!

My other fun is my brace which I refer to it as Frankenfoot!  I received it just before Christmas of 2016. I decorated it, as you can tell. 2017-03-22 10.21.47 It does help with longer walks and it keeps me stable but it gets heavy after a time.  Who would of thought a piece of plastic would get that heavy? My next adventure is to hook up my driving assistant quickstick so I can do my own little errands and get the hell out of the house without depending on others.  I’m grateful for people that do help me but there are times I just want to go to Taco Bell and get me some food and go home without disturbing others’ days.  With my hands healing and nicer weather approaching, my mood has been better.  So I need to get my independence back!

 

Next is our camping season!  This I cannot wait.  This will be the first summer without cancer treatments and I can enjoy without the side effects looming.  I still get some but they are not as worrisome!  One trip will be to the Porcupines (UP) so we have to cross the Great Mack bridge.  I’m not a fan of it but you gotta do what you gotta do!  I forget our other trips but we do have a few booked!  It will be so nice to be able to eat and share laughs this summer.  I can tell from last year’s pictures that I was feeling bad.  I love taking pictures but there were few.  I regret that but, again, not feeling well makes you just want to curl up and sleep.

So I think I caught up on everything.  I’m hoping everyone is doing well!  Take care and talk to you soon!

**DJSpoonieGirl**