I know I have this in my other blog but it would be nice to have all my diagnosis and other fun stuff here.
First, I was dx with Discoid Lupus in 2004 (Feb) by my dermatologist (dermi). He was treating me with alopecia with cortisone shots in my scalp. It was a series of maybe 10 areas he did and this went on for months, every other week. Let me tell you, it sucked! I wouldn’t wish this upon anyone! As time goes by, the dermi noticed the skin area was scaly. So he ordered a punch biopsy and VIOLA! The test came back for Cutaneous Discoid. Pretty much is a skin autoimmune disease. My dermi then tells me he is not familiar with lupus (any form) so he referred me to a few others that could help.
So I went. Did not like any of them. I don’t want a doctor who is going to rush me out of their office. So a few years go back without seeing a dermi…
Life continued onward. My hair fell out in clumps and ended up like this. I ended up shaving it all off because, to me, it looked ridiculous having patches of hair and mostly bald spots. I cried! I did this on my own without having any support system. Ok I had a few folks but my days are spent at home looking at this. It was very depressing. After a while, I bought a few wigs, learned how to use makeup and have a mess of scarves. Life didn’t seem too bad. I mean, it’s just hair. It doesn’t define me. It made getting ready a lot quicker! I adapted and accepted this and eventually it did grow back. I still have spots that will be bare due to scarring but I don’t care. It’s just hair.
In 2013 (May), I went to Ob/Gyn to find out why I was having horrific cramps, dry heaves, monster headaches and really bad cycles. I thought my insides were coming out. The nurse did the pap smear and said the dr will call if there is any abnormalities. Well, the dr didn’t call but his assistant did and the result was cancer. REALLY?! WTF?! So they made me an appointment with an oncologist. Ugh! So I met with the Dr Hanna (love this guy!) and finalized my hysterectomy on June 25, 2013 (had to be at Henry Hood 5:30am for prep). Everything went well, surgery wise. Here are the succession of my poor belly…
A week later
My follow up with Dr Hanna was a hard one. The pathology did find cancer outside the uterus so I had to take Magace. It’s a cancer drug that is supposed to shrink the cells.
April. My scalp flared up again. I ended up making an appointment with a HF dermi who specializes with lupus. Not going through a doctor who just doesn’t know how to treat it. Come to find out that cortisone shots are the only way to treat this but they gave me a higher dose and it did the trick. I think after 2 to 3 weeks, the lesions on my head were healing and closing up. This is why I do have bald spots because of these sores. They would itch, I scratch, they leave scars. Oh well!
Same year but May, Dr Hanna did a biopsy from my pap exam/CT scan and found that cancer is back. It didn’t spread beyond the cervical wall but he wanted to do surgery to remove the infected cells. One year later, back on the cutting board (Surgery date- June 30, 2014). After surgery, I was setup with a radiologist to start that mess. Oy!
In July, I started radiation. As time went along, I dealt with side effects from it. Nausea, fatigued, diarrhea. Got through that and then I had to do 3 internal (Brachytherapy). Nothing like having a plastic dildo with radiation up one’s whoha! Got through it and done! YAY!
March. My dad passed away on March 26,2015. He had a stroke about 6, almost 7, years ago and his health had been declining. He finally gave his life to God and did it his way…at home. This is my favorite picture and will always remember him on my wedding day. Still trying to deal with his passing is a bitch.
From then on, I have been dealing with anxiety and depression big time. I don’t want to leave my house. I prefer isolation and I’m ok with that.
In June, I was having a hard time having a bowel movement and when I did, it was all blood. This freaked me out! Went to a walk in clinic and the doctor thought it was hemorrhoids. Got to do a colonscopy and all the doctor could find was inflamed colon. He said there are cells that could be precancerous. Wonderful! A week later, Dr Hanna check and he thought the same. Of course, had the CT scan again and, again, cancer is back but this time in my lymph nodes. Awesome! Back to radiation and all it’s disastrous side effects. My poor body isn’t healed from the first round now I have to endure this…again?! Fishsticks! So again, I go.
So I went through the radiation but ended up stopping about 2 weeks before my finish date. I was in so much pain trying to have a BM! It pretty much held me captive and made me very angry. I was Rx Norco for the pain but I rather find out what the hell is going on than just cover it. My radiologist got me an appoinment with a colon doctor and he was horrible. He rushed me out. Luckily, I had a scheduled appointment with another colon doctor. So my radiologist had me off for 2 weeks and it did some good but I had to finish those 2 weeks. Finally finished them in October of 2015.
In January, I did see Dr Hanna with my updated CT scan and no cancer is to been seen! I do go back in April and probably another scan but for now, I’m happy not having cancer. Just me and lupus…hanging out.
Well I think I caught everyone up. I know I probably forgot a test or a hospital visit but I know it’s in my other blog somewhere. Now to go forward to a new year…now that it is almost March